Supporting Clients In Navigating Chronic Health Conditions

Thanks so much for coming the Looking Glass Supporting Clients In Navigating Chronic Health Conditions training on May 1, 2026!

Below are references from the training as well as some resources that might be helpful. I’m also including links to more info about the support groups I facilitate since people asked about where to find them. All groups are currently enrolling for the next cycle, which will start in early June.

If you have questions or would like to discuss consultation, please be in touch!

(click on these images to link to the info and registration pages)

References

Adzrago, D., Williams, D.R. & Williams, F. Multiple chronic diseases and psychological distress among adults in the United States: the intersectionality of chronic diseases, race/ethnicity, immigration, sex, and insurance coverage. Soc Psychiatry Psychiatr Epidemiol, (60), 181–199. https://doi.org/10.1007/s00127-024-02730-1

Akyirem S, Forbes A, Wad JL, Due-Christensen M. (2022). Psychosocial interventions for adults with newly diagnosed chronic disease: A systematic review. J Health Psychol. Jun;27(7):1753-1782. doi:10.1177/1359105321995916

American Psychiatric Association. (2020, November 13). Chronic Pain and Mental Health Often Interconnected https://www.psychiatry.org/news-room/apa-blogs/chronic-pain-and-mental-health-interconnected

Ben-Moshe, l. (2020). Decarcerating Disability: Deinstitutionalization and Prison Abolition. Minnesota Press.

Berkeley Disability Lab. (n.d.) Disability 101. https://disabilitylab.studentorg.berkeley.edu/disability-101/disability-101-ableism/

Blackwater, A. (2025, August 18). The High Physical and Psychological Cost of Chronic Illness Burnout. https://themighty.com/topic/chronic-illness/chronic-illness-disability-burnout-effects/

Brown, A., Hayden, S., Klingman, K., Hussey, L. C. (2020). Managing Uncertainty in Chronic Illness From Patient Perspectives, Journal of Excellence in Nursing and Healthcare Practice, 2(1), 1–16DOI: 10.5590/JENHP.2020.2.1.01

Brown, L. X. Z. (2017). Neurodiversity and trauma-informed practice. The Autistic Advocate. https://autisticadvocacy.org/2017/09/neurodiversity-and-trauma-informed-practice/

Chen Y., Wu C., & Qian, W. (2025). Underestimated anxiety in chronic diseases: A cross-sectional study on specific risk factors. Medicine, 104:10(e41791). http://dx.doi.org/10.1097/MD.0000000000041791

Chen, Y., Wu, C., Qian, W. (2025). Underestimated anxiety in chronic diseases: A cross-sectional study on specific risk factors. Medicine 104(10) DOI: 10.1097/MD.0000000000041791

Cleveland Clinic. (2025, October 27). Chronic Illness. https://my.clevelandclinic.org/health/articles/4062-chronic-illness

Conner, K. J., M. Acosta, V. M., Nouri, R. Tyler von Wrangel, M., Gramillo, E., Conner, A. (2023). Psychotherapy Experiences of U.S. Adults With Physical Disabilities: Recommendations for Affirmative Practice, The Counseling Psychologist, 51(7) 970–1004 

Csecs, J. L. L., et al. (2022). Joint hypermobility links neurodivergence to dysautonomia and pain. Frontiers in Psychiatry, 12, Article 786916.https://doi.org/10.3389/fpsyt.2021.786916

Davis, D. (2026, March 6). Living in Limbo: Supporting Clients Through the Biopsychosocial Impact of Diagnostic Uncertainty [Conference presentation]. Chronic Illness Therapist Conference, Atlanta, GA, United States

Fennell, P.A., Dorr, N., George, S.S. (2021). Elements of Suffering in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: The Experience of Loss, Grief, Stigma, and Trauma in the Severely and Very Severely Affected. Healthcare, 9, 553. https://doi.org/10.3390/healthcare

Graham, C.D., Gouick, J., Krahé, C., Gillanders, D. (2016). A systematic review of the use of Acceptance and Commitment Therapy (ACT) in chronic disease and long-term conditions. Clin Psychol Rev., (46)46-58. doi:10.1016/j.cpr.2016.04.009

Hill, K. A., & Colón-López, V. (2024). Delays in care by race, ethnicity, and gender before and during the COVID-19 pandemic using crosssectional data from National Institutes of Health's All of Us Research Program. Women's Health Issues, 34(4), 391–400.

Jóhannsdóttir Á, Egilson SÞ, Haraldsdóttir F. Implications of internalised ableism for the health and wellbeing of disabled young people. Sociol Health Illn. 2022 Feb;44(2):360-376. doi: 10.1111/1467-9566.13425

Kemp AH, Tree J, Gracey F and Fisher Z (2022) Editorial: Improving Wellbeing in Patients With Chronic Conditions: Theory, Evidence, and Opportunities.Front. Psychol. 13:868810.

doi: 10.3389/fpsyg.2022.868810

Lewis, Talila A. (2022, January 1). Working Definition of Ableism - January 2022 Update https://www.talilalewis.com/blog/working-definition-of-ableism-january-2022-update

National Institute of Mental Health. (n.d.) Understanding the Link Between Chronic Disease and Depression. https://www.nimh.nih.gov/health/publications/chronic-illness-mental-health

Ng, I. K., Tham, S. Z., Singh, G. D., Thong, C., Teo, D. S. (2024). Medical Gaslighting: A New Colloquialism, American Journal of Medicine, 137(10), 920-922

Patient-Led Research Collaborative, 2026 Long COVID Fact Sheet https://patientresearchcovid19.com/storage/2026/03/2026-Long-COVID-Awareness-Day-Fact-Sheet.pdf

Salamon, M. Harvard Women’s Health Watch. (2023, May 1). Invisible illness: More than meets the eye. https://www.health.harvard.edu/diseases-and-conditions/invisible-illness-more-than-meets-the-eye

Quadt, Lisa and Savage, Georgia and Bond, Rod and Davies, Kevin A. and Critchley, Hugo and Eccles, Jessica, Rates of Neurodivergent Traits and Variant Connective Tissue in Patients with Chronic Pain/Chronic Fatigue: A Case-Control Study. Available at SSRN: http://dx.doi.org/10.2139/ssrn.5381277

Scott, A. J., Correa, A. B., Bisby, M. A., Dear, B. F.; Depression and Anxiety Trajectories in Chronic Disease: A Systematic Review and Meta-Analysis. (2023). Psychother Psychosom, 92 (4): 227–242. https://doi.org/10.1159/000533263

Stroebe M, Schut H. The dual process model of coping with bereavement: rationale and description. Death Stud. 1999 Apr-May;23(3):197-224. doi: 10.1080/074811899201046. PMID: 10848151.

Ward, J. H., et al. (2023). Increased rates of chronic physical health conditions across autistic adults compared to non-autistic controls. Molecular Autism. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10510241/

Watson KB, Wiltz JL, Nhim K, Kaufmann RB, Thomas CW, Greenlund KJ. Trends in Multiple Chronic Conditions Among US Adults, By Life Stage, Behavioral Risk Factor Surveillance System, 2013–2023. Prev Chronic Dis 2025;22:240539. DOI: http://dx.doi.org/10.5888/pcd22.240539

Wechuli, Y. (2023). Medicalizing disabled people’s emotions: Symptom of a dis/ableist society. Front. Sociol. 8:1230361.doi: 10.3389/fsoc.2023.1230361

Yi Huang, Y., Travis Loux, T., Huang, X, & Feng, X. (2023). The relationship between chronic diseases and mental health: A cross-sectional study. Mental Health & Prevention, Volume 32, 200307 https://doi.org/10.1016/j.mhp.2023.200307

Zoccante, L. (2024). Neurodevelopmental disorders and connective tissue symptoms: Prevalence and interdisciplinary implications. Children,12(1), 33. https://doi.org/10.3390/children12010033

Resources

The Viral Underclass: The Human Toll When Inequality and Disease Collide

Steven W. Thrasher

https://us.macmillan.com/books/9781250796639/theviralunderclass

The Invisible Kingdom: Reimaging Chronic Illness

Meghan O’Rourke

https://www.penguinrandomhouse.com/books/317923/the-invisible-kingdom-by-meghan-orourke/

Care Work: Dreaming Disability Justice

Leah Lakshmi Piepzna-Samarasinha

https://arsenalpulp.com/Books/C/Care-Work

The Future is Disabled: Prophecies, Love Notes and Mourning Songs

Leah Lakshmi Piepzna-Samarasinha

https://arsenalpulp.com/Books/T/The-Future-Is-Disabled

Disability Visibility: First-Person Stories from the Twenty-First Century

Edited by Alice Wong

https://www.penguinrandomhouse.com/books/617802/disability-visibility-by-alice-wong/

Year of the Tiger: An Activist’s Life

Alice Wong

https://www.penguinrandomhouse.com/books/688504/year-of-the-tiger-by-alice-wong/

Decarcerating Disability: Deinstitutionalization and Prison Abolition

Liat Ben-Moshe

https://www.upress.umn.edu/book-division/books/decarcerating-disability

The Sound of a Wild Snail Eating

Elizabeth Tova Bailey

https://www.elisabethtovabailey.net/

In the Kingdom of the Sick: A Social History of Chronic Illness in America

Laurie Edwards

https://academic.macmillan.com/academictrade/9781620406281/inthekingdomofthesick/

What Doesn’t Kill You: A Life with Chronic Illness—Lessons from a Body in Revolt

Tessa Miller

https://us.macmillan.com/books/9781250751454/whatdoesntkillyou

Chronic Conditions

Karen Engle

https://www.mqup.ca/chronic-conditions-products-9780228016748.php

Cope Magazine: 

https://www.copemagazine.com/

Brilliant Imperfection by Eli Clare

https://www.dukeupress.edu/brilliant-imperfection

Feminist, Queer, Crip

Alison Kafer

https://iupress.org/9780253009340/feminist-queer-crip/

How to Tell When We Will Die: On Pain, Disability, and Doom

Johanna Hedva

https://www.penguinbookshop.com/book/9781638931164

This is Body Grief: Making Peace with the Loss that Comes with Living in a BodyJayne Mattingly

https://www.penguinrandomhouse.com/books/740125/this-is-body-grief-by-jayne-mattingly/

Encyclopedia of Disability: https://handicapcenter.com/wp-content/uploads/2014/05/Encyclopedia-of-Disability-SAGE-2006-vol-1.pdf

Notes from a Sick Bed, Tessa Brunton: 

https://www.graphicmedicine.org/comic-reviews/notes-from-a-sickbed/

Harvard Graphic Medicine Collection: https://countway.harvard.edu/services/collections/graphic-medicine-countway

Sins Invalid, 10 Principles of Disability Justice: https://static1.squarespace.com/static/5bed3674f8370ad8c02efd9a/t/606e264c8c838d062a7b0fbb/1617831500521/10+PRINCIPLES+OF+DISABILITY+JUSTICE+-+Plain+Text.pdf

What is Disability Justice?

https://www.sinsinvalid.org/news-1/2020/6/16/what-is-disability-justice

What is Crip Time?

https://www.accessibility.com/blog/what-is-crip-time

Spoon Theory:

https://cdn.totalcomputersusa.com/butyoudontlooksick.com/uploads/2010/02/BYDLS-TheSpoonTheory.pdf

https://www.washingtonpost.com/wellness/2023/01/14/spoon-theory-chronic-illness-spoonie/

Ableism 101:

https://www.accessliving.org/newsroom/blog/ableism-101/

#Ableism:

https://cdrnys.org/blog/uncategorized/ableism/

Structural Ableism:

https://theabilitytoolbox.com/systemic-ableism/#:~:text=Some%20medical%20professionals%20engage%20in,%E2%80%9D%20or%20%E2%80%9Cdisabled%20enough.%E2%80%9D

What is Internalized Ableism:

https://www.neurodiverging.com/what-is-internalized-ableism-neurodivergent-people-need-to-know/#:~:text=Internalized%20ableism%20is%20the%20way,others%20we%20see%20ourselves%20in

Chronic Illness Burnout:

https://themighty.com/topic/chronic-illness/chronic-illness-disability-burnout-effects/

Access Intimacy

https://leavingevidence.wordpress.com/2011/05/05/access-intimacy-the-missing-link/

SICK, Magazine: @asickmagazine

a thoughtful magazine by sick & disabled people

Bed Zine: @bed_zine

Bed Zine compiles art & writing by disabled folks about BED🛏

Chronic Love Club: @chronicloveclub

A community dedicated to those with chronic illness/disability; by showing love and kindness to one another, we can get through the tough times! 💛

The Sick Times

“A non-profit news site covering the Long Covid crisis. Founded by journalists Betsy Ladyzhets and Miles Griffis”

@ thesicktimes

https://www.instagram.com/thesicktimes/

https://thesicktimes.org/

Patient Resource Guide:

https://www.triadlibrary.org/resources/patient-resource-guide/

Bateman Horne Center: https://batemanhornecenter.org

“Expanding hope, access, and informed care for people with ME/CFS, Long COVID, and related infection-associated chronic conditions.”